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PCD patients treated with L-carnitine in the Faroe Islands are thus not offered primary prevention with an ICD, instead they are, apart from being treated with L-carnitine, also closely monitored in an outpatient setting with regular blood tests and consultations with a clinical geneticist and cardiologist

20 ChengM.-L.WangC.-H.ShiaoM.-S.LiuM.-H.HuangY.-Y.HuangC.-Y.et al (2015)